Editorial: Genetic test results do stir privacy fears

Friday, Feb. 11, 2000 | 9:25 a.m.

Scientists have made amazing breakthroughs in unraveling the human genetic code. Researchers hope that these advances will lead to promising developments, such as unlocking the mysteries of what cause some illnesses, possibly allowing doctors to treat and even prevent some diseases. But, as is often the case, there are concerns that the science may be getting ahead of some of the difficult ethical concerns that the public has yet to resolve.

One of the legitimate worries that policymakers have is whether genetic testing could be used to discriminate against individuals. With that concern in mind, Rep. Louis Slaughter, D-N.Y., and Sens. Tom Daschle, D-S.D., and Edward M. Kennedy, D-Mass., are sponsoring legislation that would prevent employers from refusing to hire or promote people whose genetic testing may reveal potential health problems. In addition, the legislation would prohibit health insurers from using genetic information to refuse coverage.

President Clinton reaffirmed his commitment Wednesday to legislation preserving the privacy of such sensitive health records. Clinton, seeking to set an example, issued an executive order that bars federal agencies from discriminating against their employees on the basis of genetic testing. "This extraordinary march of human understanding imposes on us a profound responsibility to make sure that the age of discovery can continue to reflect our most cherished values," Clinton told a gathering of the American Association for the Advancement of Science. It really is a shame that the government has to even consider passing such privacy protections, but such is the world where businesses are in danger of chipping away at what little vestiges of privacy we have left.